Video
Torie Robinson - Epilepsy Sparks Insights is an educational video series about epilepsy, epilepsy research, featuring clinicians, scientists, researchers, geneticists, and more!
**NOT FOR CLINICAL OR PATIENT DECISION MAKING**
Watch: Torie Robinson - Epilepsy Sparks Insights
Twitter: Torie Robinson & EpilepsySparks
Website: Torie Robinson Podcast
EEG Talk: It's time all neurologists can read an #EEG!
By Fábio Nascimento (@fabnascimen) & Brandon Westover. Proud partner of @yesILAE, @curedravet, @neurology_live
Brainbook aims to revolutionise neurosurgical case-based-learning by social media discussion, with a twist: they welcome everyone to join their diverse discussion; covering everything from the patient and family experiences down to the technicalities of the procedure.
Watch: Brainbook
Twitter: realbrainbook
Website: brainbookcharity.org
Podcasts
Epilepsy Sparks Insights is an educational audio podcast about epilepsy led by Torie Robinson, whose mission is to spark interest in and between patients, carers, medical providers, researchers, scientists – and the world. Follow her on social media: @epilepsysparks or @torierobinson10. For additional information, please check out our podcast page: epilepsysparks.com/podcast
**NOT FOR CLINICAL OR PATIENT DECISION MAKING**
Tune in: epilepsysparks.buzzsprout.com
Twitter: EpilepsySparks
BrainWaves is an academic audio podcast whose mission is to educate medical providers through clinical cases and topical reviews in neurology and medicine. Follow them on Twitter @BrainWavesAudio, or just tune in every Thursday for the latest shows!
**NOT FOR CLINICAL OR PATIENT DECISION MAKING**
Tune in: brainwavesaudio.libsyn.com
Twitter: BrainWavesAudio
See our guest-blog by BrainWaves Podcaster & Neurologist Jim Siegler here
The Epilepsy Spectrum is your short and sweet stop for all things epilepsy! Listen every Sunday for new topics, stories or interviews all about epilepsy!
**NOT FOR CLINICAL OR PATIENT DECISION MAKING**
Tune in: the-epilepsy-spectrum
Twitter: epilepsypodcast
Research blogs
BrainPost makes neuroscience more accessible by providing easily digestible and accurate summaries of the latest neuroscience publications to your inbox weekly. By simplifying this process for you, they make it easier to stay connected and well informed on the latest neuroscientific advances.
Website: brainpost.co
Twitter: brainpostco
See our guest-blog by BrainPost Neuroscientist Kasey Hemington here
Epilepsy in English is a blog by neuroscientists and researchers; translating the latest exciting epilepsy research into plain English so the wider epilepsy community can understand it!
Website: epilepsyinenglish.ie
Twitter: Epilepsy_En
FutureNeuro is the SFI Research Centre for Chronic and Rare Neurological Diseases, hosted by RCSI.
Funded by Science Foundation Ireland and industry, they are the national centre dedicated to brain research. They connect national and multinational industry with key academics and clinicians based in their leading hospitals to provide diagnostic, therapeutic and eHealth solutions. Their projects with industry partners will bring diagnostic supports to market, a pipeline of new drugs, and connected health solutions that enable patients to monitor and report their health better than ever before.
Website: futureneurocentre.ie
Twitter: Futureneuro_ie
See guest-blog for FutureNeuro by Epilepsy Sparks Founder & CEO Torie Robinson here.
The SciReach project was started by the Stem Advocacy Institute, which is based in Boston, whose mission is to:
Understand the different approaches used by organisations and initiatives in science outreach
Build opportunities for organisations and initiatives in science outreach and communication to collaborate and connect
Promote an evidence-based approach for all organisations and initiatives in science outreach and communication.
Website: scireach.org
Twitter: Sci_Reach
Medical publications
Epilepsy & Behavior Case Reports is a sister journal to Epilepsy & Behavior. It is an online-only, Open Access journal devoted to the rapid publication of case reports on the behavioral aspects of seizures and epilepsy.
Website: sciencedirect.com/journal/epilepsy-and-behavior-case-reports
Twitter: EpilepsyBehavi1
European Journal of Epilepsy provides a forum for papers on all topics related to epilepsy & seizure disorders. Seizure focuses especially on clinical & psychosocial aspects, but publishes papers on the basic sciences, the investigation & practical management of seizures, the social & psychological burden & impact of the condition on people with epilepsy, their families & society at large, plus and the methods and ideas that may help to alleviate the disability & stigma, which the condition may cause.
Website: seizure-journal.com
Twitter: SeizureJourna
See our guest-blog by Seizure Journal Web Editor & Neurologist Rhys Thomas here
See Seizure Editor’s choice of the year: seizure-journal.com
Medical organisations
Representing Epilepsy Nurses in the UK, ESNA aims include:
- Improving services and care for patients, especially through prevention, diagnosis and treatment
- Providing support and advice to health care professionals caring for those with epilepsy
- Promoting nursing research, development and training
- Acting as a facilitator in the raising of the profile of the Epilepsy Nurse, support and act as a resource to nurses working in the field of epilepsy
Website: esna-online.org
Twitter: ESNA_epilepsy
The ILAE British Branch is a chapter of the International League Against Epilepsy, the professional organisation representing all those interested in the field of epilepsy. The goals of the ILAE are to:
- Advance and disseminate knowledge about epilepsy
- Promote research, education and training
- Improve services and care for patients, especially by prevention, diagnosis and treatment
Website: ilaebritish.org.uk
Twitter: ILAEBRITISH
The Young Epilepsy Section (YES) of the ILAE is a world-wide organisation of young people in the early stages of a career focused on the care of people with epilepsy, and/or epilepsy research. This includes clinical and basic scientists, nurses, physicians, students, psychologists, pharmacologists, physicists, mathematicians, and other allied health professionals.
Website: ilae.org/about-ilae/topical-commissions/yes/young-epilepsy-section-yes
Twitter: yesILAE
We are always updating our directory. If you know of any other credible, legally registered epilepsy organisations who could benefit from featuring on our website, contact us or introduce us here