Stigma of Epilepsy: A Global Survey
We are trying to explore the global levels of knowledge and societal stigma towards people with epilepsy. Areas include: negative stereotypes, work and role expectations, cultural fears, personal fears, social avoidance, and more.
A comparative effectiveness trial of digital mental health care models on depression and anxiety symptoms for adults with epilepsy
The primary aim of this research project is to examine the comparative efficacy, cost-effectiveness, acceptability, safety, and long-term outcomes of the Wellbeing Neuro Couse when delivered under two different models of care (clinician-guided versus. unguided) in people with epilepsy experiencing emotional difficulties.
Australian Epilepsy Project (AEP)
The Australian Epilepsy Project is a multi-year research study and platform business model for brain health and research translation – where participants get access to the best minds and latest technology, usually only available within research, to fast-track their treatment pathway.
PRISM (Personal, Real world Insights into Seizure Monitoring)
PRISM (Personal, Real world Insights into Seizure Monitoring) is an epilepsy research project focussed on having EEGs at home that are cool, involving a device that is easy to use, and which provides the information needed by clinicians!
Determining the utility of OPM-MEG in a clinical context
Project Aim: This project aims to fast-track regulatory approval of a new OPM-MEG system, making it the first, and only OPM-MEG system in the world to be approved for human use!
Temporal Lobe Epilepsy & Memory
We are seeking people aged 16-64 years from Australia or New Zealand living with left or right temporal lobe epilepsy (TLE) to take part in the study about the Wechsler Memory Scale-5. This is to ensure that the scale provides valid and useful results about memory in people within this group.
Neurosense: SUDEP Prediction & Prevention
Following the 1st NEUROSENSE Project workshop, “Down to Earth Feedback”, this workshop, “Accelerate Insights into Action,” aims to gather input from people with epilepsy (PWE) and their caregivers regarding the design of the SUDEP Predictive Medical Device (SMD) prototype.
Global Epilepsy Needs Study
Your experience with epilepsy matters! Don't miss your chance to make a difference 💜
We ask you to please take the survey if you haven't already done so and help improve the lives of people with epilepsy worldwide.
The Epilepsy Society’s research
The Epilepsy Society want to make sure that their research meets the needs and hopes of people with epilepsy, so have put together a very short survey which will help to shape the future of our research and ultimately could help to transform lives.
Why the Folate Controversy Persists: Mapping the biosocial complexities of folate: the relationship between folic acid and anti-seizure medicines
Why the Folate Controversy Persists: Mapping the biosocial complexities of folate: the relationship between folic acid and anti-seizure medicines.
Genseize
Genseize aims to offer the most up-to-date genetic testing (Whole Genome Sequencing) to all patients with primary epilepsy, provide equity of access to genetic testing reaching out to underserved groups, to provide a personalised approach to epilepsy management, and more