Stigma of Epilepsy: A Global Survey
Feb
1
to 5 Dec

Stigma of Epilepsy: A Global Survey

We are trying to explore the global levels of knowledge and societal stigma towards people with epilepsy. Areas include: negative stereotypes, work and role expectations, cultural fears, personal fears, social avoidance, and more.

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A comparative effectiveness trial of digital mental health care models on depression and anxiety symptoms for adults with epilepsy
Feb
16
to 14 Feb

A comparative effectiveness trial of digital mental health care models on depression and anxiety symptoms for adults with epilepsy

The primary aim of this research project is to examine the comparative efficacy, cost-effectiveness, acceptability, safety, and long-term outcomes of the Wellbeing Neuro Couse when delivered under two different models of care (clinician-guided versus. unguided) in people with epilepsy experiencing emotional difficulties.

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Australian Epilepsy Project (AEP)
Aug
1
to 31 Dec

Australian Epilepsy Project (AEP)

The Australian Epilepsy Project is a multi-year research study and platform business model for brain health and research translation – where participants get access to the best minds and latest technology, usually only available within research, to fast-track their treatment pathway.

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Temporal Lobe Epilepsy & Memory
Nov
1
to 1 Feb

Temporal Lobe Epilepsy & Memory

We are seeking people aged 16-64 years from Australia or New Zealand living with left or right temporal lobe epilepsy (TLE) to take part in the study about the Wechsler Memory Scale-5. This is to ensure that the scale provides valid and useful results about memory in people within this group.

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Neurosense: SUDEP Prediction & Prevention
Nov
17
to 8 Dec

Neurosense: SUDEP Prediction & Prevention

Following the 1st NEUROSENSE Project workshop, “Down to Earth Feedback”, this workshop, “Accelerate Insights into Action,” aims to gather input from people with epilepsy (PWE) and their caregivers regarding the design of the SUDEP Predictive Medical Device (SMD) prototype.

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Global Epilepsy Needs Study
Oct
1
to 4 Nov

Global Epilepsy Needs Study

Your experience with epilepsy matters! Don't miss your chance to make a difference 💜
We ask you to please take the survey if you haven't already done so and help improve the lives of people with epilepsy worldwide.

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The Epilepsy Society’s research
Aug
21
to 30 Sept

The Epilepsy Society’s research

The Epilepsy Society want to make sure that their research meets the needs and hopes of people with epilepsy, so have put together a very short survey which will help to shape the future of our research and ultimately could help to transform lives.

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Genseize
Jan
2
to 6 Dec

Genseize

Genseize aims to offer the most up-to-date genetic testing (Whole Genome Sequencing) to all patients with primary epilepsy, provide equity of access to genetic testing reaching out to underserved groups, to provide a personalised approach to epilepsy management, and more

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