Calendar 2024
February
Rare Disease Day
Did you know that there are heaps of rare epilepsies?! Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Eating Disorders Awareness Week
People with an epilepsy are far more likely to experience mental health issues, of which eating disorders are a type. Eating Disorders Awareness Week (EDAW) is an annual campaign to educate the public about eating disorders and to engage in efforts to provide hope and to engage support for individuals and families affected by eating disorders.
International SCN2A Awareness Day
SCN2A is one of the genes most commonly associated with early-onset epilepsy and has recently been linked to autism spectrum disorder and developmental delay.
World Encephalitis Day
World Encephalitis Day 2024 on Thursday, the 22nd of February, is the global awareness day for people who have been directly or indirectly affected by encephalitis. Encephalitis is inflammation of the brain caused by an infection or through the immune system attacking the brain and commonly causes seizures & epilepsy.
International Angelman Day
International Angelman Day (IAD) is an opportunity to raise awareness of Angelman Syndrome globally.! Two AS parents started IAD in 2012 and engaged 31 Angelman syndrome organisations worldwide to join their efforts.
International Epilepsy Day
International Epilepsy Day is an annual awareness-raising initiative organised by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE).
Sexual Health Week
People with an epilepsy are far more likely to experience sexual health challenges - which they deserve to be addressed! Sexual Health Week is Action Canada for Sexual Health and Rights’ signature public health campaign to raising awareness on key issues in sexual health, education, and health care.
SCN8A International Awareness Day
SCN8A mutations are associated with some of the most severe forms of epilepsy. 70% of affected children suffer from refractory seizures, double the rate among the overall epilepsy population.
Children’s Mental Health Week
Join us for Children’s Mental Health Week 2024 to help give a voice to children and young people across the UK. Mental health illnesses are very common amongst children with an epilepsy and amongst the rest of their family.
Time To Talk Day
Time to Talk Day is the UK’s biggest, annual mental health conversation. It’s a day for friends, families, communities, and workplaces to come together to talk, listen and change lives. People with an epilepsy are much more likely to experience mental health conditions like anxiety and depression…