We collect or use the following personal information for information updates, marketing or market research purposes:

·    Names and contact details

·    Address

·    Marketing preferences

·    Personal information used for administration of the research

·    Personal information used for the purpose of research

·    Records of consent, where appropriate

We also collect the following information for information updates, marketing or market research purposes:

·    Racial or ethnic origin

·    Religious or philosophical beliefs

·    Genetic information

·    Health information

·    Sexual orientation information

We collect or use the following personal information for medical research or archiving purposes:

·    Names and contact details

·    Address

·    Personal information used for administration of the research

·    Personal information used for the purpose of research

·    Records of consent, where appropriate

We also collect the following information for medical research or archiving purposes:

·    Racial or ethnic origin

·    Religious or philosophical beliefs

·    Genetic information

·    Health information

·    Sex life information

·    Sexual orientation information

Our lawful bases for collecting or using personal information for information updates, marketing or market research purposes are:

·    Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

·    Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:

o  We need to know of a person's details so that we can share with them research that may be of interest to them

Our lawful bases for collecting or using personal information for medical research or archiving purposes are:

·    Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

·    Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:

o  We need to know of a person's details so that we can share with them research that may be of interest to them and, with their permission, introduce them to companies doing research

Where we get personal information from

·    Directly from you

Our lawful bases for collecting or using personal information for information updates, marketing or market research purposes are:

·    Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

·    Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:

o  We need to know of a person's details so that we can share with them research that may be of interest to them

Our lawful bases for collecting or using personal information for medical research or archiving purposes are:

·    Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

·    Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:

o  We need to know of a person's details so that we can share with them research that may be of interest to them and, with their permission, introduce them to companies doing research

·    Directly from you

We keep your information for 3 years. If you would like for us to delete it at any time, please contact torie@epilepsysparks.com

If you have any concerns about our use of your personal data, you can make a complaint to us using the contact details at the top of this privacy notice.

If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.

The ICO’s address:           

Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF

Helpline number: 0303 123 1113

Website: https://www.ico.org.uk/make-a-complaint