Sacred Lives: An Account of the History, Cultural Associations, And Social Impact of Epilepsy
ISBN: 9781913913991 (Softback), Jan 2022, The Book Guild Publishing
Author: Ian Bone: Honorory Prof and retired neurologist, UK.
Brief description:
In Ancient times those with epilepsy were considered to have unique powers, even hailed as geniuses, and regarded as having a sacred disease and leading sacred lives. It is from this concept of sacredness that the title of this book is taken.
Learn more about the book on the Epilepsy Sparks Insights podcast with Ian, here.
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In ancient times, epilepsy was a condition felt to be sacred. Early myths and mystique surrounding it led to persecution, demonisation, incarceration, and social rejection. Only by the nineteenth century does epilepsy become accepted as a physical condition, and not a manifestation of madness or the result of a dangerous contagion.
Why epilepsy became and continues to be so stigmatised can be best understood by observing the manner in which, over centuries, it has been presented in the arts and media. This book reviews how it has been portrayed in literature, paintings, in the cinema and on television, in music and the theatre, in newsprint, and on social media. Here Sacred Lives takes a look at the lives of writers, painters, musicians, and actors with epilepsy and analyses how they managed their condition and its impact on their art.
Addressing the evidence on how others in society see those with epilepsy and why negative perceptions and misconceptions can result in stigmatisation, loss of opportunity and social isolation, this book concludes with a personal account on living with epilepsy as a parent, from diagnosis in childhood through to the pitfalls of adult life. It provides guidance, based on experience, to help other families and those with epilepsy on their journey.
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As a neurologist and honorary professor, Ian spent a large part of his thirty-five years career treating those with epilepsy.
Over the same period of time, he had first-hand experience through a family member who lives with seizures. Seeing epilepsy from both sides of the fence created in him an awareness that successful treatment requires an understanding of the social and personal implications of living with epilepsy in addition to controlling the seizures.
Website: sacredlives.co.uk