I knew that some people died from epileptic seizures and from accidents that occurred as a result of them (I’d had plenty myself and luckily I’m still here!). This year I found out about SUDEP Action and their award-winning, free app: EpSmon (Epilepsy Self Monitoring).

Seizure freedom is a funny thing, from the moment you are told by your doctor “you have epilepsy“ it becomes the ultimate goal. But what does seizure freedom really feel like? Is it the ultimate goal? Does life just return to normal? I hate to shatter the dream but unfortunately, it’s not quite that easy.