Epilepsy Jo is the woman sitting where I was sitting; from the moment a seizure starts to the moment it ends. It’s Epilepsy Jo who during a seizure picks at her clothes, fiddles with anything within reach, raises her eyebrows, and smacks her lips. It’s Epilepsy Jo who, as a seizure starts, makes a guttural noise like (really terrible) Mongolian throat singing.

Epilepsy is a serious problem in Afghanistan. Not only does the person suffer from epilepsy, but they also suffer from the fact that society refuses to accept them. Society calls them as crazy or mad. Even the family members don’t cooperate or want to take them to doctors. I have co-founded this organization to raise awareness about epilepsy and to introduce ways to prevent or decrease seizures.