International Angelman Day (IAD) is an opportunity to raise awareness of Angelman syndrome globally! Two AS parents started IAD in 2012 and engaged 31 Angelman syndrome organisations worldwide to join their efforts. Today, IAD has grown to over 50 AS organisations participating worldwide!
February 15th is significant because February is Rare Disease Month, and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman Syndrome.
The purpose of this day is to:
Raise awareness worldwide of the condition;
Mobilise people to action & encourage fundraising for the individual organisation in their country;
Promote research and educational resources in the organisation’s own country; and
Remember those people with Angelman syndrome who are no longer with us. -Angelman Day Info
Learn more about Angelman Syndrome here.
Learn more about the rare epilepsies here!
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